Thursday, September 27, 2007

Moving On

It has been a week since I got really depressed that Jonathan had regressed in so many areas. Today we went to see his DAN! doctor and we had a nice discussion about what has been going on and possible reasons for the regression. I am going to do several tests to check his essential elements and gut and metabolic markers.

One of the things that we talked about was Jonathan's Porphyrin test results. And the conclusion is that we need to get more aggressive with the chelation. I won't do IV. But we are going to increase the strength and frequency of the EDTA suppositories. I would absolute love to do Yasko's metal program, but we cannot afford it right now. The suppositories are covered somewhat by insurance. So I'll start with that, and then add the metals program.

The other big issue is his gut. I had it in very good shape and something happened to him after the 60th HBOT dive when we started diving at higher pressure. He got a bad die-off reaction, and since then his stools are very foul. They are well formed but boy are they stinky. Sorry to talk about stools, but this is very important. And I won't increase the EDTA until I see that his gut is better. I am going to add a different probiotic (stronger) and I will also increase his diflucan from 5ml to 10ml (gradually of course). Once I see that the stools are "normal", then I am going to increase the EDTA and the diflucan. I am also going to add DMPS suppositories in about 6 weeks. Although he does not have the SOUX genetic enzyme mutation, the fact that he has a CBS upregulation problem I know will cause his taurine to increase. So I'll work hard to keep it down. But I need to chelate that mercury and EDTA alone is not going to do it.

Here are the results of his French Porphyrin test results:

Range

Results

uP

7-14

12

7cxP

1.5 - 3.5

3.3

6cxP

0.4 - 0.8

1.4

5cxP

1.0 - 2.9

8.1

prcP

2 - 5

24.8

cP

50 - 90

471

Creatinine

1072 mg/l


Mercury Toxicity:

High levels of 5cxP, prcP and cP

Jonathan fits this profile

Autism:

High levels of 6cxP, 5cxP, prcP and cP

Jonathan slightly fits this profile. His 6cxP is just a bit high. To some it may not be considered high

Lead Toxicity:

High levels uP and cP

Jonathan does NOT fit this profile

Aluminum Toxicity:

High levels uP

Jonathan does NOT fit this profile

Porphyria Cutanea Tarda:

High levels uP and 7cxP

Jonathan does NOT fit this profile

2 comments:

Anonymous said...

Hi Alex,

I lurk every day and am so impressed with Jonathan's progress. I know you've been upset lately, but truly there are so many things to celebrate. The best thing is that he continues to make progress - so you know he is capable of progressing even more and you will see it. Keep up the good work - I know both you and Jonathan are working so hard for this. Tammy

Alex & Javier said...

Thank you Tammy. I know this is a marathon. I feel better now that I know what my next step is going to be. I am very proud of Jonathan. He is a champion!