The Most Important Thing is that He is Capable

During my meeting with Jonathan's DAN! Dr. on Thursday, I came to realize a very important fact, and that is that Jonathan keeps demonstrating over and over again that he is capable of behaving like a neurotypical child. And we need to concentrate on quality and not quantity. We have worked hard to get him to where he is, and he will always have his moments (like today) but in the end, he keeps improving. It was very good for me to talk to him about all this because it changed my perception of things. Quality instead of quantity. We have narrowed things down so much, that we need to concentrate on what we know he still has severe problems with.

His gut is a mess again. Therefore, he is going back to a full Gluten Free / Casein Free / Soy Free diet. I paid close attention to him that past 2 days, and he looks and behaves like he is high, he is on drugs again. With a bad gut, comes a leaky gut, which allows gluten and casein to go into his bloodstream and ultimately his brain. So, back to square one.

His yeast is high again. But a yeast free diet is really hard to do. No sugars, no chocolate. Almost impossible. I will reduce it as much as I can, but I will rely on Diflucan and probiotics to help me with the yeast. High yeast also makes him a bit druggy and increases his sensitivity to touch and sounds.

We went to a birthday party today. He had a little bit to eat but seemed happy and energetic. When we arrived, he was not interested in the playground or in anything else. He laid down on a bench. Then he sat down next to me and refused to play. It really killed my heart to see him like that. We almost left because I just couldn't see him so withdrawn. But Vanessa wanted to play, so we stayed. 1.5 hours later, a couple of friends came to the party with their kids and Jonathan really likes to play with their son (A.). I don't know exactly why. He started playing with A. and the other kids in the party for a long time, until we cut the cake. It made me happy to see Jonathan so happy and engaged. Like his DAN! Dr. said, the important thing is that he CAN do it.








There is something new that I want to investigate and try. It is a high Vitamin K protocol, that calls for higher dosages of Vitamin K2, Magnesium, Vitamin A and sodium bicarbonate. The purpose of this protocol is to bring calcium under control, normalize the immune system, and reduce calcium oxalate crystals found in autistic kids and that slows down the excretion of metals during chelation. K2 will slowly get rid of calcium deposits, and will put calcium back into the bones and teeth. Elevated circulating calcium causes all sorts of problems, including neurological problems. Once I get the gut under control, I am going to give this a try.