Monday, September 17, 2007

Monthly Biomed Parents' Meeting

I did not see Jonathan today at all. Left home very early for a company meeting and came home very late. Daddy said that he did well today. The only problem is that school dismisses early on Mondays and we don't have an activity for him after he gets home; and since Vanessa is at the daycare, he spends most of the day playing with the computer and his leapster. So this week I am going to find him an activity for Mondays. I'll contact the speech and language center tomorrow again to see if they can give me a Monday spot. If not, I'll try some other activity at the community center.

Today I went to the parents support group meeting we normally have monthly. We didn't have one in August because everyone was on vacation. So we spent a nice time today catching up and learning about how some of the therapies have been working for our kids.

Most reported very positive results on the neuro-feeback therapy. Better attention, some pretend play. Overall parents feel that it is a good therapy. It is just as expensive as the HBOT, so I'll need to wait a bit before trying it. But I can see how it would help Jonathan. Especially with his attention.

on HBOT, some of us reported very positive results. A couple reported not much improvement. One mom told us about her bad experience with HBOT where her daughter's e.coli bacteria grew tremendously and she felt that her daughter almost died. So we really need to be very careful and take good notes and observation whenever doing any of these therapies as no child responds identically to any of these interventions.

Lastly on non-biomedical intervention, some parents reported that visual therapy might be very helpful. It seems involved and requires parents to force the child to exercise. Jake Greenspan recommended it for Jonathan. I just haven't had the time. But I also see where this could be extremely beneficial. Jonathan has a real hard time staring or observing for a decent period of time.

On the biomedical side, nothing truly knew was mentioned. Most of us are doing a combination of therapies (e.g., Yasko, DAN!, Homeopathy, Energy therapy). Biomed is critical to the success of the other interventions.

It is really good and important for us parents of children with autism to have a support group. It is a great way to share ideas, but most importantly it is very therapeutical. I always leave feeling that I learned something new and pumped to learn and investigate more. Online groups don't do justice.

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