Sunday, July 29, 2007

Social Regression

Jonathan's social skills have dropped dramatically the past 2 days. I ran out of Dyflucan (prescription for intestinal yeast killer) last week. And I missed his Methly B12 shot on Thursday and Saturday. Given his history with yeast behaviors, it seems more likely that his yeast grew out of control the past week and reflected this weekend. It could also be that his intestinal strep returned. He has been obsessing with his Leapster toy and adding and subtracting more this week. And he is crying for everything. If Vanessa says something, or touches him or I say no, everything triggers a meltdown. His stools seemed much softer than normal. So whatever it is, it is a gut problem.

Also, given his allergic reaction to the mosquito bytes last week, I feel that his T1/T2 cell ratio is still backwards. It had gotten better during the first HBOT session. He had a mosquito byte then and it did not get abnormally swollen. But one of the 2 that he got last Thursday got very swollen, like in the old days. The Immunosciences Labs test reported that his Natural Killers are below normal. They are higher than what was reported a year ago, but still under normal ranges. So he still have autoimmune problems.

I mention this because it might be that his gluten intolerance is back, hence his behavior. I am going to contact his DAN! doctor and request an IgG food allergy test kit. The first one we did was over 2.5 years ago. The Immunosciences Labs results from last April indicated no gluten or casein intolerance in the blood. So I decided to allow him to eat gluten at school during the summer. But the IgG might right now be more helpful because I get if there is a reaction, it means that he still has a pretty severe leaky gut. Hence all the strange regressions/behaviors.

I feel like I am starting from square one, but my financial situation is dramatically worse. So I cannot spend the same amount on tests as I did before. I am going to do a Comprehensive Stool Analysis test this week (I already have the kit) and I am going to do the IgG test. And re-adjust supplements and diets based on those items. We are going to start HBOT again in a few days, and it scares me that he might regress because the HBOT might feed microorganism like strep.

Social Interaction Observations

Jonathan last weekend was incredibly social. He spent the entire weekend playing with our friends' kids for hours. It was awesome to watch.

This weekend however was a different story. Yesterday we went to a park and he didn't want to play in the playground. He just wanted to walk around. Stuff that he used to do years ago. He did play in the maze for a bit with Vanessa, but there were other kids and he did not join them like he did last weekend. After about an hour, we went to a shopping mall, got some ice cream and went to the movies. He did great. Loved the movie and stayed until the end.

Today at home he did not touch a single toy. He just played with electronic toys and when we asked him to take a break he would watch TV. He was not interested in the playground, biking, nothing. We went to our friends' Brooke and Luis' house and he was not interested in playing at all with any of the kids. He watched TV, then colored on his own and when he was totally bored, I allowed him to play with the PC because all he wanted was to go home and we were not done with dinner. He spent a couple of hours playing with the PC. He did not even want to sing happy birthday. I picked him up and sat him on the table next to me and he hugged me as if he was scared. Again, he was overcome all these behaviors and this is strange / hard to live again.

It is important to note that his language has not regressed.

I will order the Dyflucan tomorrow and watch to see how it goes.

1 comment:

Bea said...

I am sorry to hear about the regression, its so hard to go on those rolercosterrides. I hope so much that Jonathans gut will improve and he will be as social as the weeks before. Jonathan showed you he can be a social and happy kid.It was so great to see that side of him, I am sure he will be returning to that.I think of you!!! You are a HERO!!!
Bea