My Son Gave Me Flowers

I took Jonathan this morning to the lab to get the blood work done for mitochondrial disorder markers. Jonathan behaved incredibly well. The people were extremely nice. And since I put the anesthetic cream on his arms an hour prior to appointment, he did not feel any pain. Making the process very smooth. They took 6 tubes full with blood. The tests are for Lactate, Pyruvate, Ammonia, Carnitine (free and total) and Creatine Kinase. I assume we will have the results next week and adjust the mitochondrial cocktail according to these results until we see the specialist on June 19th.

After that, we went home to get Vanessa and headed over to a very good friend of mine's house. We spent the day with her, her husband and her 2 kids (one is almost 3 and the other one is almost 1). We first went to eat lunch and then to the playground. At lunch, Jonathan was very well behaved and ate all his chicken with no issues.

On our way to the playground, Jonathan realized that there were daisies all over. He picked one out and came towards me and told me that he loved daisies. They are beautiful flowers and make him happy. Then he gave it to me and said "for you mommy. I love you". I totally melted. He had never given me flowers like that. A few times in the past, Daddy would get one and tell him to give it to me, but he would just give it to me without words and turn around. The action didn't mean anything to him. But today, it did. And it was totally spontaneous

When we arrived at the playground, he played with Vanessa and E. (the 3 year-old boy) for almost 3 hours. He complaint at some point of having a stomachache, but for the most part, he did very well and had a lot of stamina. He went to a little garner nearby were flowers were just starting to bloom and brought me another one.

He also wanted to plant trees. He found a big dead branch, and he insisted he wanted to plant it. I tried to explain to him that it was dead, but he insisted that if we planted it, it would grow again. So I helped him plant the tree.

At my friends house, Jonathan played beautifully with E. and Vanessa. He realizes that E. is little and had a lot of patience with him. E. liked to push him, and jump on him and Jonathan tolerated it well. Towards the end of the day (we spent 6 hours with them), Jonathan was tired and asked me to go home.

Again, I do not notice regression of any kind yet. I have not given him supplements since Tuesday morning. I am going to start back tomorrow and see what happens.

Without the supplements this week, he has been waking up with more energy and earlier than normal all by himself. I wonder why.

Kids playing at the playground.

Jonathan enjoyed climbing on all the different figures

The kids played running down the hill for a while. Jonathan got tired after about 5 times. Vanessa and E. kept going for about 5 more rounds.

It is hard to tell unless you click on the picture to enlarge it, but here is the dead branch that Jonathan planted. He was very proud of it.

A picture of E. and Vanessa.

Jonathan walked around the park on his own and found this. He pretended it was a coconut. He was very protective of it (both Vanessa and E. wanted it) because he was the one that found it.

My beautiful flowers!!!!